Ségolène Aymé
Emeritus Director of Research, French Institute of Health and Medical Research (INSERM)
Meet Ségolène Aymé
Ségolène is a medical geneticist and chairs the Topic Advisory Group on rare diseases at the World Health Organization and the European Union Committee of Experts on Rare Diseases. She is also the founder of Orphanet, a portal which provides information on rare diseases and orphan drugs and the editor-in-chief of the Orphanet Journal of Rare Diseases.